Chronic illnesses are health conditions that necessitate continuous care, lasting for an extended period, and affecting a person’s physical, emotional, and social well-being. While you may not be able to remove their struggles, you can provide companionship and support to make a meaningful difference in their lives. Here are some ways you can help:
Listen & Validate
Discovering that an individual has a chronic illness can significantly alter daily life. It may leave individuals feeling lost and confused, requiring extra support from family and friends. One of the most powerful things you can do is listen. Individuals may feel ignored or unheard when hearing phrases such as “Everything happens for a reason” and “What doesn’t kill you makes you stronger,” promoting toxic positivity and dismissing the raw emotions these individuals experience daily. When an individual opens up to you, they trust you will make them feel validated and supported. Instead, you can say phrases such as “I know how hard you’re trying” or “What can I do to help you?” showing your support and willingness to help.
Educate yourself
Discovering that someone you love has a chronic illness can be challenging and confusing. You may not know how to assist them or what their illness may entail. Acquiring knowledge about a family member’s chronic illness enables you to better support them in managing their condition and navigating the healthcare system, which is essential for understanding their requirements, offering educated support, and improving their health outcomes. Speaking to a family member’s healthcare provider and doing your own research allows you to have more informed discussions about care and make conscious decisions about available treatments and results. Understanding the illness can guide you and your family members through any stressors or anxiety that may come and allow you to gain management skills and coping strategies.
Respect Boundaries & Limits
Adaptability, active listening, and understanding are essential to respecting the boundaries of someone with a chronic condition. Knowing that their energy levels may fluctuate daily, it’s important to ask about their needs and to never pressure them into activities or tasks that may exceed their limits. Respect their answers and don’t assume. Their well-being is necessary, and allowing them to advocate for themselves is essential to their support. If they have to cancel plans or say no to an activity, don’t take it personally– address that their well-being is a top priority and offer help. Check in on their feelings and be mindful of medical conversations, ensuring they feel heard and respected.
